Introduction: Dementia can adversely affect the quality of life (QoL) of family members/partners of those affected. Measuring this often-neglected burden is critical to planning and providing appropriate support services. This study measures this impact using the Family-Reported Outcome Measure (FROM-16). Methods: A large UK cross-sectional online study through patient research platforms, recruited family members/partners of people with dementia, to complete the FROM-16. Results: Totally, 711 family members/partners (mean age=58.7 y, SD=12.5; females=81.3%) of patients (mean age=81.6, SD=9.6; females=66.9) with dementia completed the FROM-16. The FROM-16 mean total score was 17.5 (SD=6.8), meaning “a very large effect” on QoL of family members, with females being more adversely impacted. Conclusions: Dementia profoundly impacts the QoL of family members/partners of patients. Routine use of FROM-16 could signpost provision of care support, reducing family members’ burnout. Such routine data could be used in economic analysis of the burden of dementia as well as in predicting institutionalization.

R. Shah

M.S. Salek

F.M. Ali

S.J. Nixon

K. Otwombe

J.R. Ingram

A.Y. Finlay

Alzheimer Disease & Associated Disorders

​Alzheimer Disease & Associated Disorders is a peer-reviewed, multidisciplinary journal directed to an audience of clinicians and researchers, with primary emphasis on Alzheimer disease and associated disorders. The journal publishes original articles emphasizing research in humans including epidemiologic studies, clinical trials and experimental studies, studies of diagnosis and biomarkers, as well as research on the health of persons with dementia and their caregivers. The scientific portion of the journal is augmented by reviews of the current literature, concepts, conjectures, and hypotheses in dementia, brief reports, and letters to the editor.

Alzheimer Disease and Associated Disorders is a peer-reviewed, multidisciplinary journal aimed at clinicians and researchers, with a primary focus on Alzheimer disease and associated disorders. The journal publishes original articles that emphasize research in humans, including epidemiological studies, clinical trials, experimental studies, and investigations into diagnosis and biomarkers, as well as research on the health of individuals with dementia and their caregivers. The scientific content of the journal is complemented by reviews of current literature, discussions of concepts, conjectures, and hypotheses related to dementia, brief reports, and letters to the editor.

《Alzheimer Disease and Associated Disorders》是一本经过同行评审的多学科期刊，面向临床医生和研究人员，主要关注阿尔茨海默病及其相关疾病。该期刊发表原创文章，强调对人类的研究，包括流行病学研究、临床试验和实验研究、诊断和生物标志物的研究，以及对痴呆症患者及其照顾者健康的研究。期刊的科学部分还包括对当前文献的综述、痴呆症相关的概念、推测和假设的讨论、简报和给编辑的信件。

Category	Quartile
医学	4
医学, 临床神经病学	4
医学, 病理学	4

Dementia and Its Profound Impact on Family Members and Partners

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