Pyoderma gangrenosum is a rare, autoinflammatory disorder characterized by rapidly progressive painful ulcers that are challenging to diagnose and treat. This qualitative study aimed to explore the experiences of patients living with pyoderma gangrenosum. Using an inductive qualitative approach, semi-structured interviews were completed with a purposive sample of 21 patients with pyoderma gangrenosum recruited from a public dermatology outpatient clinic in Melbourne, Australia. A reflexive thematic analysis was performed, yielding 5 themes: pain, physical challenges, social functioning and relationships, mental health, and treatment. The impact of pyoderma gangrenosum on quality of life was multifaceted and varied throughout disease progression, remission, and recurrence. Experiences of delayed diagnosis and misdiagnosis were common, causing distress and resulting in unnecessary treatments including surgery. Severe pain disrupted sleep and limited daily activities, eroding patients’ sense of self-control and perpetuating depressed mood and anxiety. Management should include early specialist referral, providing information sheets for managing pain and wound care, and communicating disease expectations. In conclusion, this study has deepened understanding and given personal perspectives on what it is like to live with a condition poorly understood by many health professionals. Increased efforts should be made to increase clinician awareness regarding pyoderma gangrenosum to facilitate early diagnosis.

Jacqueline Jiang

Robert Kelly

Emma Veysey

Susan Rossell

Garry Zhu

Darren Haywood

Acta Dermato Venereologica

JOURNAL OF REHABILITATION MEDICINE 是一本以英文出版的国际同行评议期刊，每年至少出版 10 期。发表原创文章、评论、病例报告、短通讯、特别报告和致编辑的信函，以及社论和书评。该杂志努力为读者提供各种主题，包括：功能评估和干预研究、不同患者群体的临床研究、物理和康复医学方法、残疾状况的流行病学研究以及康复的职业和社会医学方面的报告。

Acta Dermato-Venereologica is an international peer-reviewed journal published in English, with a minimum of 10 issues per year. It publishes original research articles, reviews, case reports, short communications, special reports, letters to the editor, editorials, and book reviews. The journal aims to provide readers with a variety of topics, including functional assessment and intervention studies, clinical research on different patient populations, physical and rehabilitation medicine approaches, epidemiological studies of disability conditions, and reports on the occupational and social medicine aspects of rehabilitation.

《Acta Dermato-Venereologica》是一本国际同行评审的英文期刊，每年出版至少10期。该期刊发表原创研究文章、评论、病例报告、短通讯、特别报告、致编辑的信函、社论和书评。期刊致力于为读者提供多样化的主题，包括功能评估与干预研究、不同患者群体的临床研究、物理治疗与康复医学方法、残疾状况的流行病学研究，以及康复的职业与社会医学方面的报告。

Category	Quartile
医学	4
医学, 康复医学	3
医学, 运动科学	4

Living with Pyoderma Gangrenosum: A Qualitative Study

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Journal Info

Category	Quartile
SPORT SCIENCES	2