Abstract The rapid advances in genomics over the last decade have come to fruition amid intense public discussions of justice in medicine and health care. While much emphasis has been placed on increasing diversity in genomics research participation, an overly narrow focus on recruitment eschews recognition of the disparities in health care that will ultimately shape access to the benefits of genomic medicine. In this essay, we suggest that achieving a just genomics, both now and in the future, requires an explicit ELSI of translation—normative and pragmatic scholarship that embraces the interconnectedness of research and clinical care and centers the obligations of researchers, institutions, and funders to mitigate inequities throughout the translational pipeline. We propose core principles to guide an ELSI of translation and to ensure that this work balances the value of the generalizable knowledge that genomics research generates and the value of the individuals and communities who make this research possible.

Meghan C. Halley

Nate W. Olson

Euan A. Ashley

Aaron J. Goldenberg

Holly K. Tabor

The Hastings Center Report

黑斯廷斯中心报告探讨了医学、医疗保健、公共卫生和生命科学领域的伦理、法律和社会问题。每年六期提供文章、论文、生物伦理问题的案例研究、法律和政策专栏、照顾者的故事、同行评议的学术文章和书评。作者来自各行各业和学科，表达了一系列观点和政治观点。该报告的读者群包括医生、护士、学者、行政人员、社会工作者、健康律师和其他人。

The Hastings Center Report explores ethical, legal, and social issues in the fields of medicine, healthcare, public health, and life sciences. It publishes six issues annually, featuring articles, papers, case studies on bioethics, legal and policy columns, caregiver stories, peer-reviewed scholarly articles, and book reviews. Authors come from various fields and disciplines, presenting a range of perspectives and political viewpoints. The report's readership includes physicians, nurses, scholars, administrators, social workers, health lawyers, and others.

《Hastings Center Report》探讨医学、医疗保健、公共卫生和生命科学领域的伦理、法律和社会问题。该期刊每年出版六期，内容包括文章、论文、生物伦理案例研究、法律与政策专栏、照顾者故事、同行评审的学术文章和书评。作者来自不同领域和学科，表达多样的观点和政治立场。该报告的读者群体包括医生、护士、学者、行政人员、社会工作者、健康律师等。

Category	Quartile
哲学	3
哲学, 伦理学	3
哲学, 医学伦理	3
哲学, 社会科学生物医学	3
哲学, 卫生保健与服务	4

A Just Genomics Needs an ELSI of Translation

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Journal Info

Category	Quartile
SOCIAL SCIENCES, BIOMEDICAL	2