The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology.   Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.

The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. This journal publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice that applies psychological principles within the context of pediatric health. The aim of this field is to promote the health and development of children, adolescents, and their families through the use of evidence-based methods.

《Journal of Pediatric Psychology》是美国心理学会儿科心理学分会（Division 54）官方期刊。该期刊发表与儿科心理学相关的理论、研究和专业实践的文章。儿科心理学是一个综合性的科学与实践领域，旨在将心理学原理应用于儿科健康的背景下。该领域的目标是通过使用循证方法促进儿童、青少年及其家庭的健康和发展。

Journal of Pediatric Psychology

Objective: To examine how one aspect of family life, notably family rituals and routines, may protect children with asthma from anxiety-related symptoms. Methods: Eighty-six families (43 children with asthma, 43 healthy comparison children) participated in the study. Children completed measures of anxiety (Revised Child Manifest Anxiety Scale) and health. Parents completed measures of stress (Parenting Stress Index), family rituals (Family Routines Questionnaire), and family health. Results: Families that reported more meaning in their family routines had children who reported lower levels of anxiety. Mother endorsement of family ritual meaning and father endorsement of family ritual routine were most strongly related to lower levels of anxiety. Support for the protective function of meaningful family rituals was stronger when a general health stress model was used rather than the presence or absence of asthma alone. Conclusions: Family rituals may serve a protective function for children with asthma under conditions of heightened parenting stress.

S. Markson

B. H. Fiese

Family Rituals as a Protective Factor for Children With Asthma

家庭仪式作为哮喘儿童的保护因素

Objective To evaluate predictions from professionals in pediatric rheumatology regarding the child-rearing practices of caregivers of children with juvenile rheumatoid arthritis (JRA) and healthy classmates. Methods Sixteen professionals identified items from the Child-Rearing Practices Report (CRPR) that were expected to differentiate between caregivers of children with JRA (64 mothers, 45 fathers) and caregivers of healthy classmates (64 mothers, 40 fathers). Families were interviewed, and physician ratings of disease severity were obtained. Results Experts predicted difficulties in protectiveness, discipline, and worry. Ratings from parents of children with JRA showed modest agreement with the professionals, surprising similarity to controls, and a limited association with disease factors. Conclusions Contrary to expert opinion, JRA has only a modest influence on some child-rearing practices. Educating health care providers may minimize misperceptions about caring for children with JRA, and screening parents of children with more severe disease may assist in allocating education and services for families.

Cynthia A. Gerhardt

Kathryn Vannatta

J. Mark McKellop

Janalee Taylor

Murray Passo

Jennifer Reiter-Purtill

Meg Zeller

Robert B. Noll

Brief Report: Child-Rearing Practices of Caregivers With and Without a Child With Juvenile Rheumatoid Arthritis: Perspectives of Caregivers and Professionals

简报：有和没有患幼年类风湿性关节炎儿童的照护者的育儿实践：照护者和专业人士的观点

Objective: To obtain caregiver and medical professional opinions regarding the child caregivers of children with sickle cell diseases (SCD) Methods: We obtained self-reports of parenting practices from 48 caregivers of child caregivers of matched classroom comparison peers using the Child-Rearing Practices ratings were also obtained from 12 experts in pediatric SCD regarding their prediction a child with SCD would respond. The experts predicted differences in protectlveness slve worry. Objective interim and lifetime illness severity scores were obtained for the Results: Caregivers showed similarity between the two groups, disagreement with the relationship to illness severity. Conclusions: Experts who work with children with chronic illnesses such as SCD seen Ideas that do not correspond with parental reports of their child-rearing practices, s careful clinical evaluations.

Karen Kalinyak

Child-Rearing Practices of Primary Care Children With Sickle Cell Disease: The I of Professionals and Caregivers

镰状细胞病患儿的主要照顾者育儿实践：专业人员与照顾者的视角

Abstract Objective The purpose of this study is to examine diabetes distress as a potential mediator of the relationship between depression symptoms and diabetes outcomes, including hemoglobin A1c (hemoglobin A1c [HbA1c]) and diabetes management behaviors in a clinical sample of adolescents and young adults. Methods In a pediatric diabetes clinic, 716 youth (ages 12–21 years) completed measures of diabetes distress (Problem Areas in Diabetes-Teen [PAID-T]), a single-item of diabetes distress, and depression (Patient Health Questionnaire [PHQ-9]) as part of standard care. Electronic health records were extracted for the “Six Habits” and glycemic management (HbA1c). Results Overall, 3.6% (n = 26) of adolescents had clinically elevated diabetes distress and depression symptoms, 5.0% had diabetes distress alone, 8.7% had depression symptoms alone, and 82.7% had neither clinical elevation of diabetes distress nor depression symptoms. Results of mediation analysis demonstrated diabetes distress (both full and single-item measures) fully mediated the relationship between depression symptoms and HbA1c (p &amp;lt; .001). Also, mediation analysis results showcase incomplete mediation of the effect of the Six Habits score on HbA1c appears by PAID-T Diabetes Distress. Conclusions In a clinical sample of youth with type 1 diabetes, both depressive symptoms and diabetes distress are associated with HbA1c. Furthermore, diabetes distress fully mediates the relationship between depressive symptoms and HbA1c. As part of standard clinical care, the single-item screener for diabetes distress captured similar results as the full-scaled PAID-T. With limited clinical resources, providers may consider focusing assessment and interventions on the psychological factor of diabetes distress within the diabetes clinic to maximize the impact on glycemic control and consider the use of single-item screening to identify distress.

Dana Albright

Joseph Wardell

Annalise Harrison

Kara Mizokami-Stout

Emily Hirschfeld

Ashley Garrity

Inas Thomas

Joyce Lee

Screening for diabetes distress and depression in routine clinical care for youth with type 1 diabetes

在1型糖尿病青少年的常规临床护理中筛查糖尿病困扰和抑郁

Diabetes distress (DD) is a negative emotional response related to the burdens of living with type 1 diabetes (T1D) and is linked with diabetes outcomes, such as hemoglobin A1c (A1c). Yet, less is known about how other glycemic indicators, average blood glucose and time in range, relate to DD, and which demographic characteristics are associated with higher DD.In total, 369 teens (Mage 15.6 ± 1.4, 51% female, MT1D duration 6.7 ± 3.8 years) screened for DD using The Problem Areas in Diabetes-Teen Version to determine eligibility for an ongoing multi-site behavioral trial. The associations of DD, demographic factors, and glycemic indicators (A1c, average blood glucose, and time in range) were analyzed.Twenty-nine percent of teens (n = 95) scored above the clinical cutoff (≥44) for DD. Females scored significantly higher on average than males. Black/African American, non-Hispanic youth screened significantly higher compared to youth from other racial/ethnic groups. Higher DD scores were related to higher A1c and average blood glucose, and lower time in range. Logistic regression models revealed that females were significantly more likely to report clinically elevated DD than males, and teens with higher A1c were 1.3 times more likely to report DD. Age and diabetes duration were not significantly associated with clinically elevated DD scores.Results demonstrated that DD is most prevalent in Black, non-Hispanic and female teens, and DD is associated with higher average blood glucose and lower time in range. Further investigation into these disparities is warranted to promote optimal health outcomes for teens with T1D.

Hailey Inverso

Lauren M LeStourgeon

Angie Parmar

Isha Bhangui

Bailey Hughes

Emma Straton

Madeleine Alford

Randi Streisand

Sarah S Jaser

Demographic and Glycemic Factors Linked With Diabetes Distress in Teens With Type 1 Diabetes

与1型糖尿病青少年糖尿病困扰相关的社会人口学和血糖因素

Abstract Objective Reports of pain clinical trials evaluating psychological treatments often lack sufficient details on the potential and actual harm resulting from intervention. We aimed to understand how frequent and intense treatment reactions, conceptualized as unwanted symptoms, were in three clinical trials of digital Cognitive Behavioral Therapy (CBT) for adolescents with: (1) chronic primary pain, (2) sickle cell disease, and (3) chronic pancreatitis. We also aimed to understand any differences by demographic and clinical variables. Method Analyses were conducted with 246 youths (12–18 years old) experiencing chronic pain and one of their caregivers. 66% of the total sample was female. The number, intensity, and type of treatment reactions experienced were assessed post treatment. T-tests and Chi-squared tests were conducted to explore whether certain treatment reactions were more frequent as a function of baseline or clinical characteristics. Results 9% of participants experienced some negative treatment reaction. The average intensity of those events was very low on a 0–3 scale (M = 0.1, SD = 0.4). There were no differences in the prevalence or intensity as a function of participant’s sex, age, race, or baseline pain intensity. However, baseline anxiety [t = −2.4 (244); p &amp;lt; .05] and baseline pain interference [t = −2.2 (223); p &amp;lt; .05] were significantly higher in those who experienced negative treatment reactions. Conclusions A small number of participants reported experiencing negative treatment reactions, with a low intensity level. Those experiencing negative treatment reactions showed higher baseline anxiety and pain interference. Future research may build from our example to standardize collection of harms data in trials of psychological interventions.

Rocío de la Vega

Kaylee Yokoyama

Kristen Daniels

Tonya M Palermo

Unwanted or negative treatment reactions in digital psychological interventions for adolescents with chronic pain

青少年慢性疼痛数字心理干预中的不良或负面治疗反应

Abstract Objective The primary aim of this study was to determine if neighborhood disadvantage predicted internalizing symptoms and body mass index (BMI) in youth with spina bifida (SB), while accounting for several sociodemographic factors. We also explored whether resilience factors helped explain associations between neighborhood disadvantage and internalizing symptoms or neighborhood disadvantage and BMI. Methods Participants (n = 69, Mage=14.13, Range: 8–20, 51% biological female, 25% Hispanic/Latinx White, 28% Other/Multiracial, 48% non-Hispanic/Latinx White) were drawn from a retrospective chart review of clinical data, including self-reported resilience factors and internalizing symptoms, collected as part of the standard of care in a multidisciplinary pediatric SB clinic. Neighborhood disadvantage scores were extracted from participant addresses. Using structural equation modeling, we examined whether neighborhood disadvantage predicted BMI and internalizing symptoms. We explored whether these paths were mediated by resilience factors. Results Higher neighborhood disadvantage predicted higher BMI and lower internalizing symptoms. Higher neighborhood disadvantage predicted higher resilience factors, which predicted lower internalizing symptoms. Higher resilience factors did not predict BMI. Conclusions Neighborhood disadvantage may require youth with SB to navigate their way to additional resilience factors to maintain better psychosocial outcomes. However, having more resilience factors may not help offset the physical health costs of disadvantaged neighborhoods.

Samantha Ruby Scott

Robin L Peterson

Samantha J North

Jillian Sari Merrick

Christine L Petranovich

Pamela E Wilson

Ann Lantagne

Tess S Simpson

Having more resilience factors only gets you so far in the context of neighborhood disadvantage: understanding differential predictors of internalizing symptoms and body mass index in youth with spina bifida

在社区不利背景下，拥有更多韧性因素仅能起到一定作用：理解脊髓裂青少年内化症状和体重指数的差异预测因素

Abstract Objective Sickle cell disease (SCD) is associated with significant morbidity and mortality. Hematopoietic stem cell transplantation (HCT) can improve health-related quality of life (HRQOL) but may be physically and emotionally challenging. Thus, the aim of this study was to understand the experience of HCT from the perspective of youth and young adults (YYAs) post-HCT for SCD and their parents. Methods YYAs were recruited from an urban hospital. Sociodemographic and HCT-specific information was analyzed for all enrolled. YYAs and/or their primary caregivers during HCT, participated in semi-structured interviews (e.g., pre-HCT knowledge, challenges, advice for families/health care providers). Interviews were audio-recorded, transcribed, and analyzed using content analysis. Results There were 19 YYAs enrolled (63.2% male; 68.4% Black or African American; 47.4% Hispanic or Latino; M days post-HCT = 1946.53 ± 1329.13; M age at HCT = 10.95 ± 6.10 years old; M current age 15.74 ± 5.78 years old). Interviews were done with six YYAs alone, five YYA-caregiver dyads, and eight caregivers alone. The caregivers were all mothers. Participants reported underestimating the emotional impact HCT would have on themselves and their family members. They experienced challenges related to isolation, academics, finances, and post-HCT medical needs. In contrast, they felt well prepared for physiological aspects of HCT. They sought HCT to improve YYAs’ HRQOL and encouraged others to consider it, but to be cognizant of the potential psychosocial impact. Conclusions This study highlights the importance of preparing families for the psychosocial effects of HCT. Incorporating psychosocial assessment, education, and intervention throughout HCT has the potential to promote HRQOL for YYAs and their families.

Dara M Steinberg

Carly Mulinda

Katerina Castaño

Katie DiCola

Molly L Tanenbaum

Abigail Onderwyzer Gold

Melissa P Beauchemin

Monica Bhatia

“Being alone for a whole year [is hard]” Families reflect on the emotional toll of stem cell transplantation for sickle cell disease

“独自度过一整年[很难]” 家庭反思镰状细胞病干细胞移植的情感代价

Abstract Objective This study investigated biological, psychological, and behavioral aspects of caregivers’ responses to toddlers’ pain-related distress by measuring caregivers’ high-frequency heart rate variability (HRV) responses during toddler vaccination pain and examining associations with caregivers’ behavioral responses and psychological stress. Methods Participants included caregiver–toddler dyads (N = 194) from a longitudinal cohort-sequential study who were observed during toddlers’ 12-, 18-, or 24-month routine vaccinations. Changes in caregiver HRV were analyzed using growth curve modeling. Conditional growth curve models examined associations between caregiver HRV and caregivers’ concurrent behavior and psychological stress. Results The unconditional growth curve model indicated a slight linear decrease in caregiver HRV (i.e., vagal withdrawal) across the 3 min post-needle (unstandardized B = –0.06, p = .049). In conditional growth curve models, higher levels of parenting stress were associated with less vagal withdrawal during the post-needle period (standardized B = 0.47, unstandardized B = 0.02, p = .003). Caregivers’ behavioral responses (i.e., use of soothing and distress-promoting behaviors), state anxiety, and general anxiety symptomology were not significantly associated with HRV responses. Conclusions Caregiver parasympathetic nervous system activity levels changed minimally from baseline to post-needle and decreased slightly across the post-needle period. Caregivers’ self-reported parenting stress was associated with their parasympathetic responses to the procedure. Findings support an improved understanding of the mechanisms underlying caregivers’ responses to children’s pain-related distress in a naturalistic setting.

Shaylea D Badovinac

David B Flora

Heather Edgell

Dan Flanders

Hartley Garfield

Eitan Weinberg

Deena Savlov

Rebecca R Pillai Riddell

Caregivers’ physiological responses during toddler vaccinations: associations with psychological and behavioral responses

照护者在幼儿接种疫苗期间的心理生理反应：与心理和行为反应的关联

Abstract Objective This study examined the role of central sensitization in the experience of pain among adolescents and young adults with the most severe genotypes of sickle cell disease (SCD). We hypothesized that adolescents and young adults with chronic SCD pain would demonstrate a higher perceptual response to repeated stimulation of identical intensity (i.e., temporal summation of pain, TSP) compared to counterparts with infrequent pain. We also examined psychological risk factors that can impact pain sensitivity. Methods Patients ages 12–21 years, diagnosed with SCD type Hb SS or Hb S Beta0Thalasemia, who reported infrequent pain (≤2 pain days/month; n = 25) or met AAPT criteria for chronic SCD pain (n = 25) were enrolled. Patients were age- and sex-matched, with similar proportions receiving chronic blood transfusion and hydroxyurea. Patients completed static quantitative sensory testing (QST) and dynamic TSP testing to assess pain sensitivity. Patients and a caregiver completed demographic and psychological measures (depression, anxiety, pain interference, pain catastrophizing). Results Simple slope analysis revealed differentially elevated heat TSP among adolescents and young adults with chronic SCD pain (b = 3.14, p = .002) but not those with infrequent pain (b = 0.45, p = .61). Faster habituation was further observed for those with chronic compared to infrequent pain. Adolescents and young adults with chronic pain reported more frequent depression, anxiety, and pain interference symptoms; however, psychological symptoms and pain catastrophizing were not associated with QST or TSP (ps &amp;gt;.17). Conclusion Current results demonstrate that a well-established, prognostic, QST risk marker (i.e., TSP) may distinguish chronic from infrequent pain subgroups of adolescents and young adults with SCD.

Cynthia Karlson

Harrison Dickens

Wynette Williams-Kirkwood

Megan Mascaro

Erin Jackson

Veronica Carullo

Melissa McNaull

Matthew C Morris

Temporal summation of pain in sickle cell disease: comparison of adolescents and young adults with chronic vs. infrequent pain

镰状细胞病中的疼痛时间总和：青少年与年轻成人慢性疼痛与偶发疼痛的比较

Abbreviation	J. Pediatr. Psychol.
Journal Impact	2.72
Quartiles(Global)	PSYCHOLOGY, DEVELOPMENTAL(Q2)

ISSN	0146-8693, 1465-735X
h-index	139

Publication Information	Publisher: Oxford University Press，Publishing cycle: ，Journal Type: journal，Open Access Journals: No
Basic data	Year of publication: 1976，Proportion of original research papers: 93.67%，Self Citation Rate:7.40%， Gold OA Rate: 9.20%

Journal of Pediatric Psychology

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