Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those who seek effective ways to help people with mental retardation. The journal reports new teaching approaches, program developments, administrative tools, program evaluation, service utilization studies, community surveys, public policy issues, training and case studies, and current research in mental retardation. Intellectual and Developmental Disabilities is a peer-reviewed journal whose consulting editors represent a broad spectrum of settings: universities, research centers, public and private residential care facilities, and specialized community service agencies.

Intellectual and Developmental Disabilities is dedicated to meeting the information needs of those seeking effective ways to assist individuals with intellectual disabilities. The journal reports on new teaching methods, program developments, administrative tools, program evaluations, service utilization studies, community surveys, public policy issues, training, case studies, and current research in the field of intellectual disabilities. Intellectual and Developmental Disabilities is a peer-reviewed journal with consulting editors representing a wide range of settings, including universities, research centers, public and private residential care facilities, and specialized community service agencies.

《Intellectual and Developmental Disabilities》致力于满足那些寻求有效帮助智力残疾人士的信息需求。该期刊报道新的教学方法、项目发展、管理工具、项目评估、服务利用研究、社区调查、公共政策问题、培训和案例研究，以及智力残疾领域的最新研究。《Intellectual and Developmental Disabilities》是一本经过同行评审的期刊，其顾问编辑来自广泛的背景，包括大学、研究中心、公共和私人居住照护机构，以及专业社区服务机构。

Intellectual and Developmental Disabilities

Abstract Advocacy has long been heralded as a way to create change for individuals with intellectual and developmental disabilities (IDD) and their families. However, without an established measure, it is difficult to accurately characterize advocacy activities. Drawing from extant research, the Advocacy Activities Scale was developed to assess three domains of parent advocacy: advocacy for one’s own children, advocacy for other families, and advocacy for systemic change. Factor analyses were conducted using data from two projects reflecting 382 parents of individuals with IDD from seven states and the District of Columbia. The scale confirmed the three moderately correlated domains of parent advocacy and demonstrated that the scale has high: reliability, validity, test-retest reliability, and moderate correlations with related measures.

Chak Li

Meghan M. Burke

Julie Lounds Taylor

Leann S. DaWalt

Zachary Rossetti

Intellectual and developmental disabilities

Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities

建立智力与发展障碍个体父母的倡导活动量表

Melissa DiSipio

Intellect Dev Disabil

Presidential Address 2024—Achieving Health Outcomes Across the Lifespan

2024年总统致辞——实现全生命周期的健康成果

Abstract We examined the priorities parents hold for their children with disabilities and the pathways through which parents access needed information and resources related to these valued areas. Our sample included 405 parents of children (ages 12 and under) who experienced a diversity of disabilities and varied support needs. Although each of the parents wanted their children to experience an array of formative experiences, the extent to which parents were familiar with local resources related to these important areas was uneven and often low. A constellation of barriers was said to stand in the way of connecting to the information and help they needed. When searching for disability-related information, parents often turned to a combination of sources, including professionals and technology.

Emily R. Lanchak

Erik W. Carter

Elise D. McMillan

“You Don’t Know What You Don’t Know”: Parent Perspectives on Navigating Disability-Related Information and Resources

“你不知道你不知道的”：家长在获取残疾相关信息和资源方面的观点

Abstract Drawing on Bronfenbrenner’s ecological systems theory (1992), we asked how certain resources contribute to family resilience in families of children with ASD: family quality of life (FQOL; family resources), sense of community and loneliness (informal resources), and family-centered support provided by the state (formal resources). One hundred and twenty-one Israeli parents of children with ASD completed an online survey. Path analysis using AMOS was conducted. FQOL contributed to increased family resilience. Path analysis showed loneliness, sense of community, and services use contributed to family resilience through FQOL. Overall, the research model explained 68% of the variance in family resilience. Implications for research and practice are discussed.

Ayelet Gur

Yifat Bar Meir

Maayan Edelstein

Mirit Nagar

Òrly Rokach

Ari Reich

Tali-Noy Hindi

Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective

自闭症谱系障碍儿童家庭中的家庭复原力：生态系统理论视角

Abstract This study investigated the racial/ethnic differences in COVID-19-related worry amongst family caregivers of adults with intellectual and developmental disabilities (IDD) living in Texas using the COVID-Related Thoughts and Behavioral Symptoms-Adult Version (COV-TaBS-A) questionnaire. Two hundred and six caregivers completed the survey. Compared to White caregivers, Latino caregivers were more likely to be very concerned about having enough food and supplies (adj OR 3.41, 95% CI [1.50, 7.74]) when adjusting for being that sole caregiver and using provider services. In free text questions, caregivers described feeling overwhelmed by additional responsibilities, disruptions in home health services, and concerns about their loved ones’ wellness. Study findings can be used to strategize support for caregivers of adults with IDD during pandemic/emergency situations.

Laiba Asif

Kristen A. Staggers

K. Jordan Kemere

Ambrielle Davis

Ellen Fremion

Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities

成年智力及发展障碍者照护者的COVID-19担忧中的种族/族裔差异

Abbreviation	Intellect. Dev. Disabil.
Journal Impact	1.87
Quartiles(Global)	REHABILITATION(Q2)

ISSN	1934-9491, 1934-9556
h-index	73

Publication Information	Publisher: American Association on Intellectual and Developmental Disabilities，Publishing cycle: ，Journal Type: journal，Open Access Journals: No
Basic data	Year of publication: 2007，Proportion of original research papers: 100.00%，Self Citation Rate:5.90%， Gold OA Rate: 0.00%

Intellectual and Developmental Disabilities

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Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities

Presidential Address 2024—Achieving Health Outcomes Across the Lifespan

“You Don’t Know What You Don’t Know”: Parent Perspectives on Navigating Disability-Related Information and Resources

Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective

Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities

Establishing an Advocacy Activities Scale for Parents of Individuals With Intellectual and Developmental Disabilities

Presidential Address 2024—Achieving Health Outcomes Across the Lifespan

“You Don’t Know What You Don’t Know”: Parent Perspectives on Navigating Disability-Related Information and Resources

Family Resilience in Families of Children With Autism Spectrum Disorders: Ecological Systems Theory Perspective

Racial/Ethnicity Disparities in COVID-19 Worry for Caregivers of Adults With Intellectual and Developmental Disabilities