The American Journal on Intellectual and Developmental Disabilities (Print ISSN: 1944–7515; Online ISSN: 1944–7558) is published by the American Association on Intellectual and  Developmental Disabilities. It is a scientifi c, scholarly, and archival multidisciplinary journal for reporting original contributions of the highest quality to knowledge of intellectual disabilities, its causes, treatment, and prevention.

The American Journal on Intellectual and Developmental Disabilities (Print ISSN: 1944–7515; Online ISSN: 1944–7558) is published by the American Association on Intellectual and Developmental Disabilities. It serves as a scientific, scholarly, and archival multidisciplinary journal dedicated to reporting original contributions of the highest quality to the understanding of intellectual disabilities, including their causes, treatment, and prevention.

《American Journal on Intellectual and Developmental Disabilities》是由美国智力和发展障碍协会出版的期刊（印刷版 ISSN: 1944–7515；在线版 ISSN: 1944–7558）。该期刊是一个科学、学术和档案性的多学科期刊，旨在报告对智力障碍及其原因、治疗和预防的高质量原创贡献。

American Journal on Intellectual and Developmental Disabilities

Past research shows positive correlations between oral narrative skill and reading comprehension in typically developing students. This study examined the relationship between reading comprehension and narrative language ability of 102 elementary students with mild levels of intellectual disability. Results describe the students' narrative language microstructure and relative strengths and weaknesses in narrative macrostructure. Students' narrative macrostructure accounted for significant variance in reading comprehension beyond what was accounted for by narrative microstructure (i.e., mean length of utterance in morphemes, number of different words, total utterances). This study provides considerations for measuring narrative quality when characterizing the functional language skills of students with mild levels of intellectual disability. Measurement tools that quantify the quality of language provide important information regarding targets of intervention beyond grammar and vocabulary.

Andrea Barton-Hulsey

Rose A. Sevcik

MaryAnn Romski

Narrative Language and Reading Comprehension in Students With Mild Intellectual Disabilities

轻度智力障碍学生的叙事语言与阅读理解能力

Abstract Cross-sectional (N = 106) and longitudinal (N = 35) samples of siblings (ages 11–38) reported on closeness and conflict in their relationships with sisters and brothers with intellectual disability. For closeness, confirmatory factor analysis (CFA) distinguished feelings of emotional closeness from reciprocal sharing behaviors for these siblings. Age effects and changes over time indicated increasing emotional closeness and a general reduction in conflict from adolescence to young adulthood, with stable reciprocal sharing. Cross-sectionally, closeness was greater when siblings were involved in caregiving, and conflict was less when siblings no longer co-resided. Sibling constellation features (sex, birth order, age spacing) had limited effects at this developmental period. Findings support a combination of life-span developmental change and enduring attachment in these sibling relationships.

Frank J. Floyd

Catherine L. Costigan

Shana S. Richardson

Sibling Relationships in Adolescence and Early Adulthood With People Who Have Intellectual Disability

智力障碍人士在青春期和成年早期的兄弟姐妹关系

Tuberous sclerosis complex (TSC) is a genetic condition characterized by both medical and neuropsychiatric diagnoses that emerge across the lifespan. As part of a clinical trial, caregivers of children with TSC were interviewed about their experiences navigating medical, school, and social services. Semistructured interviews (N = 20) with caregivers of children with TSC (27-60 months) were conducted upon exit from the study. The interviews covered topics related to experiences following diagnosis, interactions with providers, sources of information, and access to services and treatment. The main themes from the caregiver interviews included: (1) sources of information about TSC and treatment; (2) access to high-quality and expert medical care; (3) perception and diagnosis of TAND; (4) impact of epilepsy on daily life, intervention, and schooling; and (5) access to therapeutic services, compatible providers, and evaluations. Additionally, parents provided recommendations for other caregivers navigating their child's early treatment following diagnosis. These results reflect the importance of current research priorities for TSC stakeholders, including implementation of existing clinical guidelines, improved access to TSC expertise, and coordinated and integrated health care.

Carly Hyde

Logan Shurtz

Nicole McDonald

Maria Pizzano

Charles A. Nelson

Elizabeth A. Thiele

Connie Kasari

Shafali Jeste

Diagnostic Journey for Tuberous Sclerosis Complex—Interviews From a Clinical Trial

结节性硬化症诊断历程——来自一项临床试验的访谈

Resilience in families of autistic children and children with intellectual disability is associated with factors such as family functioning, social support, and financial strain. Little is known about family resilience during the COVID-19 pandemic when many resources were limited. This study examined the association of family resilience with child characteristics, family resources, and socioecological factors during the pandemic. Data collected during the COVID-19 pandemic from 734 United Kingdom parents/caregivers of children who are autistic and/or have intellectual disability were analyzed using path analysis. Greater family resilience was significantly associated with fewer child behavior problems, absence of intellectual disability, higher financial status, and greater family functioning, though not school support. These factors might guide future research and practices to support vulnerable families at risk of low resilience.

Elizaveta Dimitrova

Athanasia Kouroupa

Vasiliki Totsika

Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic

COVID-19大流行期间自闭症儿童与智力障碍儿童家庭的韧性

Sleep problems are common in Rett syndrome and other neurogenetic syndromes. Actigraphy is a cost-effective, objective method for measuring sleep. Current guidelines require caregiver-reported bed and wake times to facilitate actigraphy data scoring. The current study examined missingness and consistency of caregiver-reported bed and wake times from paper sleep diaries and actigraphy event mark button presses in a sample of 38 individuals with Rett and related syndromes (aged 2-36 years, mean = 13.1) across two 14-day collection time points. Rates of missingness and discrepancy between the 2 sources were relatively high and correlated with clinical severity and quality of life. Overall, the results suggest a need for alternative actigraphy scoring methods that do not rely on caregiver report in this population.

Breanne J. Byiers

Alyssa M. Merbler

Chantel C. Burkitt

Frank J. Symons

Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes

在Rett相关综合征中使用家长报告的睡眠和清醒时间进行活动记录评分的挑战

Abstract This 10-year study followed 134 caregivers of young adults with autism and intellectual disabilities, examining the effects of caregivers’ coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower well-being and higher depression among caregivers. Caregivers who were Black or mixed-race experienced higher depression than White caregivers. All five coping strategies investigated predicted changes in caregiver well-being and/or depression, with some effects moderated by young adult externalizing behaviors and sociodemographic features. Notably, higher use of positive coping among caregivers of adults with high externalizing behaviors predicted higher caregiver well-being and lower depression. Findings highlight the importance of effective coping strategies for improving caregiver mental health.

Hannah Singer

Elaine B. Clarke

Hillary K. Schiltz

Catherine Lord

Caregivers and Coping: Well-Being, Depression, and Coping Strategies Among Caregivers of Young Adults With Developmental Disabilities

照顾者与应对：发育障碍青年照顾者的幸福感、抑郁及应对策略

Abstract Multidimensional variables linked to repetitive behavior, hyperactivity, and mood dysregulation are correlated with the prevalence and severity of self-injurious behavior (SIB) in individuals with intellectual and developmental disabilities (IDD). The purpose of this exploratory study was to examine differences in Aberrant Behavior Checklist (ABC) subscales between individuals with socially maintained SIB and automatically maintained SIB (ASIB). Overall, there were not significant differences in ABC subscale elevations between the SIB and ASIB groups. However, when ASIB was stratified into distinct subtypes, notable differences in subscale elevations were observed. Our results indicate the ABC may have utility for further characterizing the neurobehavioral divergence among individuals with IDD who engage in self-injury.

Hunter C. King

Patricia F. Kurtz

Michelle D. Chin

John Michael Falligant

Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist

利用异常行为量表表征自动维持的自伤行为

Abbreviation	Am. J. Intellect. Dev. Disabil.
Journal Impact	1.95
Quartiles(Global)	REHABILITATION(Q2)

ISSN	1944-7515, 1944-7558
h-index	97

Publication Information	Publisher: American Association on Intellectual and Developmental Disabilities，Publishing cycle: ，Journal Type: journal，Open Access Journals: No
Basic data	Year of publication: 2009，Proportion of original research papers: 90.91%，Self Citation Rate:5.30%， Gold OA Rate: 0.00%

American Journal on Intellectual and Developmental Disabilities

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Narrative Language and Reading Comprehension in Students With Mild Intellectual Disabilities

Sibling Relationships in Adolescence and Early Adulthood With People Who Have Intellectual Disability

Diagnostic Journey for Tuberous Sclerosis Complex—Interviews From a Clinical Trial

Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic

Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes

Diagnostic Journey for Tuberous Sclerosis Complex—Interviews From a Clinical Trial

Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic

Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes

Caregivers and Coping: Well-Being, Depression, and Coping Strategies Among Caregivers of Young Adults With Developmental Disabilities

Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist