Autism in Adulthood

Controversy regarding the neurodiversity movement (NDM), the social and medical models of disability, autism intervention goals, and causal attributions of disability contributes to divides in the autistic and autism communities. The present study investigates the views of autistic and non-autistic autistic and autism community members on these topics. We explored whether these views are shaped by having close relationships to autistic people with intellectual disabilities (ID) and nonspeaking autistic (NSA) people.

Lynnette Hersh

Patrick Dwyer

Steven K. Kapp

Sergey Shevchuk-Hill

Ava N. Gurba

Elizabeth Kilgallon

Ally Pax Arcari Mair

David S. Chang

Susan M. Rivera

Kristen Gillespie-Lynch

Community Member Views on Autism Intervention: Effects of Closeness to Autistic People with Intellectual Disabilities And Nonspeaking Autistic People

社区成员对自闭症干预的看法：与智力障碍自闭症人士及非言语自闭症人士的亲近程度的影响

The victimization of autistic people by familiar others (interpersonal victimization) is an understudied phenomenon despite suggestions that prevalence rates may be disproportionately high. We know very little about the way autistic people perceive these experiences, and how to support them. The aim of the current study was to explore experiences of interpersonal victimization among autistic adults from their own perspective.We recruited 43 autistic adults to take part in a qualitative online study, and asked about their experiences of being victimized or taken advantage of by people they know in the past. We analyzed their comments at the semantic level using inductive thematic analysis, from a critical realist perspective.We identified two key themes in the data. The first theme, "cycles of victimization" highlighted the occurrence of polyvictimization in the sample. The second ("perceptions of victimization") focused on how these experiences were related to difficulties with trust (of both self and others), the recognition of victimization, and heightened compliance. The participants expressed difficulty with saying no to people, and found it difficult to identify when someone had negative or manipulative intentions.Our findings suggest that autistic adults experience victimization from a range of close others, and may find it difficult to recognize when someone is acting in an abusive manner. Many participants had experienced heightened compliance in response to unreasonable requests from others, however, reasons for this were varied (e.g., fear and desire to avoid confrontation) and require further investigation. These findings have implications for developing supports that enable autistic adults to recognize their own boundaries and advocate for themselves, in addition to helping them to recognize what a healthy relationship looks like.We think that many autistic people experience being hurt by people they know. This can include both physical harm such as hitting, and emotional harm such as being called horrible things. We currently know very little about these experiences, even though we think it happens a lot.The purpose of this study was to find out more about the experiences of autistic people who have been hurt by someone they know, from their own point of view.Using an online survey, we invited autistic adults who had been hurt by someone they know to write about what had happened to them from their own point of view. Forty-three autistic people wrote about their experiences and we analyzed these data by reading what they had said and looking for patterns (themes) across people.Many of the participants told us that they had been hurt more than once, by different people (e.g., their parents, and people they thought were friends). Some participants said that they found it difficult to tell whether someone is treating them badly, and to trust their own judgment about other people's behavior. Some people said that they felt like they had do what other people told them to do. Some did this to avoid getting other people into trouble, whereas others did it because they were scared of what would happen if they said no.Previous studies have shown that lots of autistic people have been hurt by people they know, and that this has a negative impact on their mental health. Researchers have also asked autistic people what might put them at risk of being hurt by people they know, and how to prevent it. To our knowledge, this is the first study to directly ask autistic people about their own experiences of being hurt by people they know, and highlights what they feel is important for us to know about it.We do not know very much about the people who took part aside from their age and gender (e.g., what their race or ethnicity is), and we do not know much about the people who victimized them (e.g., whether they were neurotypical or autistic themselves), or exactly when it happened.The findings from this study could be used to think about how we can support autistic people in saying no if someone tells them to do something they do not want to do. They can also be used to find ways to help people to recognize when other people are being hurtful. Finally, we hope that reading this study will make other researchers and practitioners interested in learning how to support autistic people who have been hurt by people they know.

Amy Pearson

Jon Rees

Samantha Forster

“This Was Just How This Friendship Worked”: Experiences of Interpersonal Victimization Among Autistic Adults

“这就是这种友谊的运作方式”：自闭症成年人的受人际侵害经历

Self-determination, described broadly as experiencing causal agency, is positively associated with quality of life (QoL) and increases through satisfaction of three basic psychological needs:

Helen E. Andrews

Darren Hedley

Simon M. Bury

The Relationship Between Autistic Traits and Quality of Life: Investigation of Indirect Effects Through Self-Determination

自闭特质与生活质量的关系：通过自我决定探究间接影响

Camouflaging (also referred to as "masking") is a commonly reported strategy used by autistic adults in everyday life to help them cope in social situations. Autistic adults report that camouflaging can have a devastating effect on mental health and well-being, yet little is known about the lived experiences of camouflaging and its impact.

Louise Bradley

Rebecca Shaw

Simon Baron-Cohen

Sarah Cassidy

Autistic Adults' Experiences of Camouflaging and Its Perceived Impact on Mental Health

自闭症成人的伪装经历及其对心理健康的影响感知

Autistic masking is an emerging research area, and so far, research has suggested that masking has a negative effect on autistic people. Masking relates to general social practices (such as identity management) and is often driven by stigma avoidance. Many nonautistic people also experience stigma that might drive them to suppress aspects of their identity. In this study, we investigate similarities and differences in experiences of masking in autistic and nonautistic people.

Danielle Miller

“Masking Is Life”: Experiences of Masking in Autistic and Nonautistic Adults

“面具即生活”：自闭症与非自闭症成人的面具体验

Vicki Gibbs

Ru Ying Cai

Abigail Love

Chris Edwards

Mustafa Al Ansari

Unheard Voices: A Systematic Literature Review of Studies Using Self-Report Methods to Gather the Perspectives of Autistic Adults with Intellectual Disability

未被听到的声音：一项系统性文献综述，关于使用自陈方法收集智力障碍的自闭症成人观点的研究

Sara M. Acevedo

Suzanne Stolz

On the Misuses of Neurodiversity: Critical Approaches and Counter-Narratives

关于神经多样性的误用：批判性方法与反叙事

Sarah Wigham

Patrick Welsh

Barry Ingham

Colin Wilson

Amy Fisher-Rogers

Rhianna Lees

Olivia McConnell

Adriana Nedyalkova

Lily Nicholson

Ann Le Couteur

Jeremy R. Parr

Post-Autism Diagnosis Support for Adults in the United Kingdom: Positive and Negative Experiences and Proposed Solutions to Address Gaps in Service Provision

英国成年人在自闭症诊断后的支持：正面与负面体验及解决服务空缺的建议

Ashton Ferguson

David Martin

“It Has Shown Me How Much I Am Capable Of”: An Exploration of Autistic Burnout Experiences in Motherhood

“它让我看到了自己有多大的能力”：自闭症母亲倦怠经历的探索

Penelope Trunk

Boin Choi

Meredith L. Rowe

Surveying Autistic Mothers About Their Parenting Practices Related to Children’s Early Language Development

调查自闭症母亲关于其育儿实践与儿童早期语言发展的关系

Abbreviation	Autism. Adulthood.
Journal Impact	9.30
Quartiles(Global)	REHABILITATION(Q1)

ISSN	2573-9581, 2573-959X
h-index	16

Publication Information	Publisher: Mary Ann Liebert Inc.，Publishing cycle: ，Journal Type: journal，Open Access Journals: No
Basic data	Year of publication: 2020，Proportion of original research papers: 92.11%，Self Citation Rate:10.50%， Gold OA Rate: 9.56%

Autism in Adulthood

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